KSHB: St. Joseph man with rare form of heart disease finds answers at Saint Luke's
Dave Rygalski lived an active life of traveling, hiking, and even skydiving until it came to a halt in 2018.
He became exhausted easily, experienced unusual swelling, could barely get out of bed, and lost about 80 pounds down to 140.
Another local hospital diagnosed him with AL amyloidosis, a type of cardiac amyloidosis that's caused by a protein disorder that can affect multiple organs. But it was not able to treat him since it was not very familiar with the disease.
Dave and his wife, Lisa, consulted multiple hospitals across three states but did not find a treatment that improved his quality of life. Dave continued to deteriorate, and he was even sent home on hospice care.
But Lisa refused to give up. She discovered the Amyloidosis clinic at Saint Luke's Mid America Heart Institute--an expert multidisciplinary team that offers the most advanced therapies for the condition.
"It was just relief that I found somebody finally that knew the disease that understood," Lisa said. "It was just like, somebody's going to finally help us."
Watch the full story below.